Oregon Ovarian Cancer Registry
This registry allows researchers to collect critical data from ovarian cancer patients and/or their kin in an effort to uncover familial cancer patterns and inheritances, improve hereditary screening methods, and provide ongoing education and promotion of current information, as well as new discoveries.
FORCE: Facing Our Risk of Cancer Empowered
954-255-8732 or 866-288-RISK
This is a national organization whose mission is to improve the lives of individuals and families affected by hereditary breast and ovarian cancer.
Society of Gynecologic Oncology
The SGO’s purpose is to improve the care of women with gynecologic cancers and to raise the standards of practice in the treatment and prevention of gynecologic malignancies.
Foundation for Women’s Cancer
The Foundation for Women’s Cancer was founded by the Society of Gynecologic Oncology (SGO) in 1991. The Foundation for Women’s Cancer is a nonprofit organization dedicated to funding research and training, and ensuring education and public awareness of gynecologic cancer prevention, early detection and optimal treatment.
Ovarian Cancer Research Fund Alliance
OCRFA is the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. They promote, advocate for and support scientific research as it relates to the causes, prevention, diagnosis, treatment, and cure for ovarian cancer; to provide education about ovarian cancer; to promote, advocate for and provide supportive services to persons affected by ovarian cancer; and to foster alliances to further those purposes.
An excellent website for the newly diagnosed.
National Ovarian Cancer Coalition
Their mission is to raise awareness about ovarian cancer to promote early detection and education about the disease. They offer a toll-free helpline.
Familial Ovarian Cancer Registry (formerly the Gilda Radner Ovarian Cancer Registry)
This is a registry to track families with a history of ovarian cancer. They have a help-line, education, information, and peer support for women with high risk (family history) of ovarian cancer.
SHARE for Women facing Breast and Ovarian Cancers
SHARE provides information hotlines for breast and ovarian cancer in English and Spanish.
Society of Gynecologic Nurse Oncologists
The SGNO is dedicated to the advancement of patient care, education, and research.
National Cervical Cancer Coalition (NCCC)
The National Cervical Cancer Coalition (NCCC) founded in 1996, is a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease.