RESOURCES
Oregon Ovarian Cancer Registry http://www.ohsu.edu/xd/health/services/cancer/getting-treatment/services/ovarian-cancer-registry.cfm 503-418-4522 This registry allows researchers to collect critical data from ovarian cancer patients and/or their kin in an effort to uncover familial cancer patterns and inheritances, improve hereditary screening methods, and provide ongoing education and promotion of current information, as well as new discoveries. FORCE: Facing Our Risk of Cancer Empowered http://www.facingourrisk.org 954-255-8732 or 866-288-RISK This is a national organization whose mission is to improve the lives of individuals and families affected by hereditary breast and ovarian cancer. Society of Gynecologic Oncology http://www.sgo.org 312-235-4060 The SGO’s purpose is to improve the care of women with gynecologic cancers and to raise the standards of practice in the treatment and prevention of gynecologic malignancies. Foundation for Women’s Cancer https://www.foundationforwomenscancer.org/ 312-578-1439 The Foundation for Women’s Cancer was founded by the Society of Gynecologic Oncology (SGO) in 1991. The Foundation for Women’s Cancer is a nonprofit organization dedicated to funding research and training, and ensuring education and public awareness of gynecologic cancer prevention, early detection and optimal treatment. Ovarian Cancer Research Alliance https://www.ocrahope.org 866-399-6262 OCRA is the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. They promote, advocate for and support scientific research as it relates to the causes, prevention, diagnosis, treatment, and cure for ovarian cancer; to provide education about ovarian cancer; to promote, advocate for and provide supportive services to persons affected by ovarian cancer; and to foster alliances to further those purposes. An excellent website for the newly diagnosed. National Ovarian Cancer Coalition http://www.ovarian.org 888-OVARIAN (888-682-7426) Their mission is to raise awareness about ovarian cancer to promote early detection and education about the disease. They offer a toll-free helpline. Gilda Radner Familial Ovarian Cancer Registry at the Roswell Park Cancer Institute http://www.ovariancancer.com 800-ROSWELL (800-767-9355) This is a registry to track families with a history of ovarian cancer. They have a help-line, education, information, and peer support for women with high risk (family history) of ovarian cancer. SHARE for Women facing Breast and Ovarian Cancers http://www.sharecancersupport.org 212-719-0364 SHARE provides information hotlines for breast and ovarian cancer in English and Spanish. Society of Gynecologic Nurse Oncologists http://www.sgno.org The SGNO is dedicated to the advancement of patient care, education, and research. National Cervical Cancer Coalition (NCCC) http://www.nccc-online.org 800-685-5531 The National Cervical Cancer Coalition (NCCC) founded in 1996, is a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease. Komak https://www.komakcares.org 503-819-7287 Financial Security and Hope for People Living with Cancer. |