Oregon Ovarian Cancer Registry
http://www.ohsu.edu/xd/health/services/cancer/getting-treatment/services/ovarian-cancer-registry.cfm
503-418-4522
This registry allows researchers to collect critical data from ovarian cancer patients and/or their kin in an effort to uncover familial cancer patterns and inheritances, improve hereditary screening methods, and provide ongoing education and promotion of current information, as well as new discoveries.
FORCE: Facing Our Risk of Cancer Empowered
http://www.facingourrisk.org
954-255-8732 or 866-288-RISK
This is a national organization whose mission is to improve the lives of individuals and families affected by hereditary breast and ovarian cancer.
Society of Gynecologic Oncologists
http://www.sgo.org
312-644-6610
The SGO’s purpose is to improve the care of women with gynecologic cancers and to raise the standards of practice in the treatment and prevention of gynecologic malignancies.
Gynecologic Cancer Foundation
http://www.thegcf.org
312-578-1439
The GCF is a non-profit organization established by the SGO to support ovarian cancer research, training of cancer specialists in laboratory research, and programs for patient education and public awareness of gynecologic cancers. The GCF sponsors the Women’s Cancer Network (www.wcn.org) for information on gynecologic cancers.
Conversations: The International Newsletter for Those Fighting Ovarian Cancer
http://www.ovarian-news.org
806-355-2565 A monthly newsletter with reports on treatment options, coping skills, clinical trials, etc. It is upbeat and contains humor with input from survivors. Subscriptions may be sent electronically or mailed.
Ovarian Cancer National Alliance
http://www.ovariancancer.org
202-331-1332
The Alliance works to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments, and cure. An excellent website for the newly diagnosed.
National Ovarian Cancer Coalition
http://www.ovarian.org
888-OVARIAN
Their mission is to raise awareness about ovarian cancer to promote early detection and education about the disease. They offer a toll-free helpline.
Gilda Radner Familial Ovarian Cancer Registry
http://www.ovariancancer.com
800-OVARIAN
This is a registry to track families with a history of ovarian cancer. They have a help-line, education, information , and peer support for women with high risk (family history) of ovarian cancer.
The Ovarian Cancer Research Fund, Inc.
http://www.ocrf.org
800-873-9569
This is an organization dedicated to the formulation of early diagnostic treatment programs and research. They seek to help patients understand the disease and its treatment.
Share: Self-help for Women with Breast or Ovarian Cancer
http://www.sharecancersupport.org
212-719-1204
SHARE provides information hotlines for breast and ovarian cancer in English and Spanish.
Society of Gynecologic Nurse Oncologists
http://www.sgno.org
800-446-3180
The SGNO is dedicated to the advancement of patient care, education, and research.
National Cervical Cancer Coalition (NCCC)
http://www.nccc-online.org
800-685-5531
The National Cervical Cancer Coalition (NCCC) founded in 1996, is a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease.
http://www.ohsu.edu/xd/health/services/cancer/getting-treatment/services/ovarian-cancer-registry.cfm
503-418-4522
This registry allows researchers to collect critical data from ovarian cancer patients and/or their kin in an effort to uncover familial cancer patterns and inheritances, improve hereditary screening methods, and provide ongoing education and promotion of current information, as well as new discoveries.
FORCE: Facing Our Risk of Cancer Empowered
http://www.facingourrisk.org
954-255-8732 or 866-288-RISK
This is a national organization whose mission is to improve the lives of individuals and families affected by hereditary breast and ovarian cancer.
Society of Gynecologic Oncologists
http://www.sgo.org
312-644-6610
The SGO’s purpose is to improve the care of women with gynecologic cancers and to raise the standards of practice in the treatment and prevention of gynecologic malignancies.
Gynecologic Cancer Foundation
http://www.thegcf.org
312-578-1439
The GCF is a non-profit organization established by the SGO to support ovarian cancer research, training of cancer specialists in laboratory research, and programs for patient education and public awareness of gynecologic cancers. The GCF sponsors the Women’s Cancer Network (www.wcn.org) for information on gynecologic cancers.
Conversations: The International Newsletter for Those Fighting Ovarian Cancer
http://www.ovarian-news.org
806-355-2565 A monthly newsletter with reports on treatment options, coping skills, clinical trials, etc. It is upbeat and contains humor with input from survivors. Subscriptions may be sent electronically or mailed.
Ovarian Cancer National Alliance
http://www.ovariancancer.org
202-331-1332
The Alliance works to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments, and cure. An excellent website for the newly diagnosed.
National Ovarian Cancer Coalition
http://www.ovarian.org
888-OVARIAN
Their mission is to raise awareness about ovarian cancer to promote early detection and education about the disease. They offer a toll-free helpline.
Gilda Radner Familial Ovarian Cancer Registry
http://www.ovariancancer.com
800-OVARIAN
This is a registry to track families with a history of ovarian cancer. They have a help-line, education, information , and peer support for women with high risk (family history) of ovarian cancer.
The Ovarian Cancer Research Fund, Inc.
http://www.ocrf.org
800-873-9569
This is an organization dedicated to the formulation of early diagnostic treatment programs and research. They seek to help patients understand the disease and its treatment.
Share: Self-help for Women with Breast or Ovarian Cancer
http://www.sharecancersupport.org
212-719-1204
SHARE provides information hotlines for breast and ovarian cancer in English and Spanish.
Society of Gynecologic Nurse Oncologists
http://www.sgno.org
800-446-3180
The SGNO is dedicated to the advancement of patient care, education, and research.
National Cervical Cancer Coalition (NCCC)
http://www.nccc-online.org
800-685-5531
The National Cervical Cancer Coalition (NCCC) founded in 1996, is a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease.
